For a lot of most cancers sufferers and their households, the questions that take centre stage after their analysis and subsequent line of remedy are: ‘What are the remedy choices accessible’, ‘what scientific trials may one take part in’ and ‘who’re the specialists for a selected most cancers sort’.
To have entry to personalised solutions to such questions, CURIA, an application-based platform, seeks to empower most cancers sufferers and their households with info to steer their most cancers journey.
Developed by AI firm Innoplexus in June final 12 months, the appliance has been downloaded greater than 175,000 instances globally. After profitable launches in Germany, Italy, Spain, Switzerland and France, CURIA was launched in India in April, the place it has gained greater than 70,000 lively customers in three months.
“When my greatest good friend and mentor was recognized with most cancers, we went by means of his remedy journey and had questions. We looked for solutions on-line and right here it turned all too clear that this info is just not simple to search out. That is the expertise of tens of millions of individuals recognized with most cancers. We based Innoplexus, an AI firm, driving drug discovery along with pharma corporations and biotechs in 2015. Out of this got here CURIA, an app which helps them navigate their most cancers journey,” mentioned Dr Gunjan Bhardwaj, founder and CEO, Innoplexus, Germany.
The applying is constructed over the OncoCoin platform, which makes use of AI expertise to look 95 per cent of the web for updates to registries, drug approval websites, and scientific trial databases. Sufferers registered with the appliance reply a questionnaire about their most cancers sort, stage and demographics. Then they obtain details about therapies, scientific trials and specialists tailor-made to their oncological profile. The data can also be continuously reviewed by a crew of specialists earlier than it’s offered to the affected person. Physicians can have a broad overview of obtainable scientific trials for his or her affected person with inclusion and exclusion standards. Along with their sufferers, they will submit functions for scientific trials, making the method simpler.
“All sufferers ought to have entry to the data they should make selections along with their physician. However like many sicknesses, most cancers remains to be thought-about a taboo in India, which makes it tough for sufferers and their households to get entry to genuine info and care. In keeping with one examine, 70 per cent of most cancers sufferers are dissatisfied with the data they obtain,” mentioned Amit Ananpara, Innoplexus India co-MD, based mostly in Pune.
Most cancers circumstances in India and globally are on the rise and there are steady improvements in most cancers therapies and revolutionary scientific trials, he mentioned. “For the medical fraternity, the developments transfer so quick, it’s tough to maintain up with who’s operating essentially the most revolutionary trials, the place, and what the most recent therapies are. Instruments similar to CURIA are essential to make sure oncologists are open to discussing sufferers’ choices with them,” added Ananpara.
For the appliance to achieve the grassroot stage, it is going to quickly be accessible in additional regional languages in India, mentioned Ananpara. It’s at present accessible in English, German, Spanish, French and Italian. Bhardwaj added that shifting ahead, CURIA can have a second opinion service particularly for sufferers in India to get one of the best line of remedy as per their wants.
Other than a robust AI spine and easy person interface, CURIA’s fashionable function ‘Most cancers Twin’ permits sufferers with comparable oncology profiles to share experiences and empower one another over non-public chats. The algorithm matches sufferers with essentially the most comparable different most cancers profiles and the chats are encrypted by blockchain.
Speaking about most cancers changing into the ‘Forgotten Massive C’ amid the pandemic, Bhardwaj mentioned that circumstances have gone undiagnosed, therapies have been delayed and psychological well being of most cancers sufferers who’ve needed to isolate has deteriorated. “The app served a a lot wanted useful resource for sufferers who’ve had physician’s appointments cancelled or skilled decreased entry to remedy ensuing from the pandemic. The app helped sufferers from the psychological well being perspective, matching essentially the most comparable sufferers to one another so they might share experiences privately,”
Bhardwaj mentioned that digital well being had a sluggish progress curve earlier than the pandemic and although it has been clear that telemedicine and apps for sufferers to handle their well being have been wanted for a very long time, the pandemic has considerably sped up the tempo of adoption.
“Apps similar to CURIA alleviate the healthcare system as sufferers have entry to dependable, tailor-made info past the physician’s workplace to assist them perceive their illness and choices. It additionally reduces the necessity for in-hospital appointments. Additional, when the healthcare focus has been on different subjects, it helps sufferers perceive what one of the best remedy choices might be for them…,” he mentioned.